RE: 21st Century Cures Act
Dear Speaker Ryan and Minority Leader Pelosi:
The undersigned members of the Physician Clinical Registry Coalition strongly support the
provisions of the 21st Century Cures Act designed to encourage and facilitate the exchange of
clinical outcomes data between electronic health record (EHR) technologies and “clinician-led
clinical data registries,” including provisions to promote interoperability of clinical data and
prevent EHR vendors from blocking the transmission of such data to third parties, such as
clinician-led clinical data registries.
We particularly support the inclusion of language to require that EHR technologies, as a
condition of certification by the Office of National Coordinator, be capable of sharing data with
clinician-led clinical data registries. In addition, the language giving the HHS Inspector General
the power to investigate and take enforcement action against improper information blocking by
EHR technologies will give real teeth to these prohibitions. Collectively, these provisions will go
a long way toward ensuring such registries can collect the data they need to improve the
quality of care and follow-up treatment provided to patients.
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