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Update on the Parkinson’s Disease Registry

Last fall, the NeuroPoint Alliance (NPA) joined together with the Parkinson’s Study Group (PSG), Neurotargeting and the Michael J. Fox Foundation (MJFF) to launch the Registry for the Advancement of Deep Brain Stimulation in Parkinson’s Disease (RAD-PD). This is the latest registry project of the NPA, which currently maintains other registry projects, including the QOD-Spine and the Stereotactic Radiosurgery registries.

The launch of RAD-PD represents a unique partnership between neurologists and neurosurgeons with support from MJFF. The registry enrolled its first patients in March, just prior to Parkinson’s Disease Awareness month in April. The goal of RAD-PD is to create the largest cohort of comprehensively characterized patients with Parkinson’s disease (PD) who have contemplated or undergone deep brain stimulation (DBS) surgery, and longitudinally follow them for five years or more.

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